How a Polish Rare Disease Organizations Is Helping Its Ukrainian Neighbors
RARECast - Ein Podcast von RARECast - Donnerstags
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Adrian Goretzki, founder and president of the Poland-based rare disease patient advocacy organization the Healthcare Education Institute, discusses the needs of Ukrainians with rare diseases, what his organization has been able to do to help those fleeing the war, and why the humanitarian crisis for these rare disease patients will last beyond the current hostilities.