Empowering Rare Disease Patients with their Own Health Records
RARECast - Ein Podcast von RARECast - Donnerstags
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Nasha Fitter, vice president of rare disease for Ciitizen, about her own experience as a mother of a child with a rare neurologic condition, her work as a rare disease advocate, and a collaboration between a group of rare neurologic disease advocacy organizations to build a natural history study on the Ciitizen platform.