A Genetic Counselor’s Journey into Patient Advocacy
RARECast - Ein Podcast von RARECast - Donnerstags
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Genetic counselor and mother of a child with the rare, genetic disease neurofibromatosis type 1 Danielle Bonadies discusses caring for a child with the condition, how her professional and private lives have been thrust together because of her son’s diagnosis, and her evolution as a patient advocate.