Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation

In this week’s episode, Brain & Life Podcast co-host Dr. Katy Peters discusses the Gilbert Family Foundation’s work on neurofibromatosis (NF) with their executive director, Laura Grannemann. She shares about ways they connect with the NF community, ongoing research the foundation is leading, and how anyone can get involved in advocacy work. Dr. Peters then speaks with neurologist and Director of The Johns Hopkins Comprehensive Neurofibromatosis Center, Dr. Jaishri Blakeley, about what exactly neurofibromatosis is, how it affects patients, and treatment options for all ages.   Additional Resources The Gilbert Family Foundation What is Neurofibromatosis? New Research Offers More Options to People with Neurofibromatosis Type 1   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at [email protected]   Social Media:   Guests: Laura Grannemann @gilbertfamilyfoundation; Dr. Jaishri Blakeley @hopkinsmedicine Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD