Episode 58: Going somewhere, why it can be stressful when you have Limb Girdle Muscular Dystrophy

On episode 58 of Beyond Labels & Limitations, John Graybill shares how traveling to his parents house brought up challenges he hadn't encountered on previous trips there. Why your friend, child or partner doesn't want to go new places or even places visited before is probably due to it's getting more challenging for them to be independent. John didn't like having to have his dad help him with going up stairs, going down the stairs, lifting him off the toilet, helping him get to the toilet, sitting in a chair. All of these activities John could somewhat do before but since the disease is weakening him John has to rely on others for a lot. Here are the 4 part stretching videos: LGMD Stretching Video Part 1 LGMD Stretching Video Part 2 LGMD Stretching Video Part 3 LGMD Stretching Video Part 4 ____________________________ Connect with John: Subscribe on YouTube Visit the Website Email: [email protected] _____________________________ "Desire to Inspire" TKG