Episode 43: Meet Amanda, who was misdiagnosed with Limb Girdle Muscular Dystrophy

In episode 43 of Beyond Labels & Limitations, John Graybill talks with Amanda about her journey from being diagnosed with Limb Girdle Muscular Dystrophy to Anti-HMGCR. At first Amanda shares optimism about going from an incurable genetic disease like LGMD to an autoimmune disease where there are treatments available. An important part of navigating this course is the "self talk" she has with herself. There were times where she didn't know how her life would turn out, especially when confronting falls or other mobility issues. Looking at the present and what she is currently going through was a big part of her success in dealing with both of these conditions. The testing Amanda had done was called, "Myositis Panel". One of the antibodies they test for is Anti-HMGCoA Reductase Antibodies. ______________________________ Connect with John: Subscribe on YouTube Visit the Website Email: [email protected] ______________________________ "Desire to Inspire" TKG