Episode 022: The Speak Foundation with Kathryn Bryant

Jen Ives and John Graybill talk with Kathryn Bryant of the Speak Foundation. Kathryn shares her limb girdle muscular dystrophy type 2I and how this disease saved her life. Kathryn has gone on to form the non-profit organization, from winning a contest, called "The Speak Foundation". The organization's mission is to improve the quality of life for those living with muscular dystrophy. Kathryn shares how important it is for those living with muscular dystrophy to be a voice in their future. This is what the Speak Foundation is doing. The Speak Foundation has a "Patient Network" that they would like for all those with LGMD to sign up for. The patient network is a way for the Speak Foundation to get information directly to you regarding a personal care attendant for helping you get ready for work, research that is being done, grants you may qualify for to help pay your bills due to covid, a mobility scooter and more. Kathryn emphasizes the importance of having a community led by individuals with the disease in making sure our voice is heard in the process of finding a cure/treatment. The Speak Foundation also hosts a yearly conference for individuals with muscular dystrophy in Atlanta, Georgia. This is a 3 day weekend retreat that is very handicap friendly in terms of hotel, getting around town, the time of day they meet. For more information and to sign up for the "Patient Network" go to: The Speak Foundation _______________________________ Connect with Jen and John: Visit the Website Subscribe on YouTube Email: [email protected] ________________________________ "Desire to Inspire" TKG